Some on this board know who I am and what I do. After yesterday, that is no longer important. My mom was diagnosed with MS yesterday after a recent health scare. She now joins her sister and her sister-in-law as those in my family battling MS. For those of you who don't know, MS is a disease that attacks the central nervous system. It can be very debilitating. My family and I are very hopeful that we caught it early enough that she will be able to still live a normal life.
I do want to say that I am not here for sympathy. I am here to raise awareness.
I know June and July are prime times for the American Cancer Society walks, but my family and I would greatly appreciate it if you would look into your local MS Society chapter for their next fundraisers or events.
Find a Chapter : National MS Society
I greatly appreciate those of you who take the time to read this.
Yours in basketball and in Cyclone Nation,
Assistant Men's Basketball Coach Waldorf College
Prayers to your family. After reading Tuesdays with Maurrie, I can see how tough of a disease that can be.
I have two aunts (my dad's sisters) that have MS, so I can somewhat relate to what you are going through with your mother. One aunt is completely confined to her "retirement home" condo (although she's only 50). The other is in her early 40s and isn't quite as confined, although she spends all her time on a scooter, which makes chasing her two very active pre-teens extremely difficult.
Originally Posted by cgwarrior33
The younger aunt has been looking into vein mapping, and although her insurance refuses to cover it (she has a lot of conspiracy theories behind that), the research behind it appears to be very promising. I'd suggest your mother look into it.
CCSVI ? A Huge Breakthrough in MS | Venous Multiple Sclerosis | CCSVI
(this is just one site that I found in a Google-search using "vein mapping multiple sclerosis". I'm unaware off the top of my head where my aunt is getting her information, however, it at least lays out the research and science behind it)
My wife has it and has been relapse free for almost 5 years. She ran into some info about low dose naltrexone and tried it and has done wonderful ever since. It's substansally cheaper than the "MS" drugs. I feel for your family, it's a tough road to hoe.
May not be MS, which is a disease that measures symptoms and their impact but Doctors claim to not know the causitive agent and therefore an effective treatment protocol.
I have a few suggestions: Get a second opinion from a Lyme Literate Doctor. The DOCTOR below was diagnosed with MS, was sent home to die and low and behold another research doctor convinced him it was Lyme with a Babesia co-infection, treated him with IV antibiotics and presto: He can get around again and DOES NOT HAVE MS.
NEWS: San Ramon conference to shed light on Lyme disease
Here's another guy who has MS who had to go on IV antibiotics to save his leg from gangrene and felt at first worse (Herxheimer or Die Off reaction like with Syphillus) and then felt a little better after as far as MS symptoms go.
Key to keep in mind: The earlier to get diagnosed and minimize neurological damage, the better. Some nerve damage may not return.
YouTube - tabascocat4256's Channel
There is a movie out you can purchase for $30 that talks about how many people are misdiagnosed with dead-end no treatment diseases only to find out they have a spirochetal infection. Many are diagnosed with ALS, MS and the like. It's in the movie which is a documentary.
Under Our Skin: An Infectious New Film
Best of luck. I've heard a lot more about MS walks, research in the last few years, than I have all of my life. Hope for a quick recovery!