Lyme disease

tyler24

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Jun 19, 2006
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So since about December I have been having a lot of health issues. Feeling sick, muscle and joint aches, and brain fog. I have been going through all sorts of testing to try and figure out what the hell was wrong. Well about 3 weeks ago, I tested positive for Lyme disease. I went through the 3 weeks of antibiotics for it and just finished up my treatment yesterday. I continue to have aching joints and a ton of fatigue. I told my doctor I still feel like crap and he has basically said we don't need to do anything more at this point. Does anyone have any suggestions of what helps and doesn't help?
 

mynameisjonas

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Jan 19, 2019
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So since about December I have been having a lot of health issues. Feeling sick, muscle and joint aches, and brain fog. I have been going through all sorts of testing to try and figure out what the hell was wrong. Well about 3 weeks ago, I tested positive for Lyme disease. I went through the 3 weeks of antibiotics for it and just finished up my treatment yesterday. I continue to have aching joints and a ton of fatigue. I told my doctor I still feel like crap and he has basically said we don't need to do anything more at this point. Does anyone have any suggestions of what helps and doesn't help?

That sucks. I can relate as I had pneumonia for multiple months and it sucked. It might be worth getting a second opinion.
 

tyler24

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Unusual amount of fatigue seems like a red flag. I’d look into it further.
I was gonna wait til Monday to follow up because the antibiotics can cause a lot of side effects and can stay in your system for up to 5 days after finishing the prescription.
 

Mtowncyclone13

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My dad has had Lyme disease 4 times, to the point where he knows based on initial symptoms. He said his fatigue didn't last after his treatment was over.

Where do you think you got it? Odd time of year for that.
 
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tyler24

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My dad has had Lyme disease 4 times, to the point where he knows based on initial symptoms. He said his fatigue didn't last after his treatment was over.

Where do you think you got it? Odd time of year for that.
Good question. Because the blot tests came back negative after the initial test. Those should have given me an idea of when I got it. I am wondering if a vaccination I got triggered a dormant Lyme disease to become active. I have no idea if that's possible but I've read it might be possible. The doctor stated that this wouldn't happen.

Sorry you said where... I live in Ames. I did a ton of walking on trails last spring, summer, and fall. I also got mauled by the gnats last spring and that's when minor issues started.
 

Rabbuk

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Good question. Because the blot tests came back negative after the initial test. Those should have given me an idea of when I got it. I am wondering if a vaccination I got triggered a dormant Lyme disease to become active. I have no idea if that's possible but I've read it might be possible. The doctor stated that this wouldn't happen.

Sorry you said where... I live in Ames. I did a ton of walking on trails last spring, summer, and fall. I also got mauled by the gnats last spring and that's when minor issues started.
did you get the bullseye at any point?
 

tyler24

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I'm a hypochondriac too and try my hardest to avoid medical discussions. I hope you get it resolved and stop feeling fatigued.
It'll work itself out how it's supposed to. I can handle some pain, I'm also a highly anxious person and it has triggered a spike in that area too.
 

amishclone

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Feel for you. I know some people who have struggled with it for yrs and yrs. If you want to PM me, I have a few things I can share with you

Good luck!
 

NorthCyd

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Just as a general warning, there has been a rise in tick borne illnesses in Iowa the last few years, so it's a good idea to keep the repellant handy when you go out in situations you are likely to encounter them.
 

LeaningCy

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I've had it twice with the same muscle aches and extreme fatigue you are describing. Luckily I caught it right away both times (saw the bullseye the first time) and antibiotics took care if it, so I don't have any lasting symptoms.

I knew someone else who had it, didn't get treated right away, and still deals with pain to the point where she had to shut down her business (hair salon).

Sorry I don't have any advice on how to deal with lasting symptoms, but keep looking into it and seeking medical advice until you find a doctor who takes it seriously.
 
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madguy30

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Do some research relating to diet. You'll find plenty on the internet. I know people who have had the most success when they adjusted their diet to low carb/keto/or even, carnivore after contracting Lymes disease.

Carbs cause inflammation.

Yeah I've known who was diagnosed with it.

Real, nutrient-based whole food has been the ticket for a lack of flare ups or at least they haven't had much happen since focusing on diet.
 

Entropy

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Oct 27, 2008
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I was diagnosed with Lyme in 1997. Fortunately I was in WI (Barron Co) which has the highest diagnosis outside of Lyme, CT. Got treated with antibiotics right away and haven't had any issues with it.
The tough news is that if you don't catch it right away, the issues can be prolonging and take longer to resolve. IA hasn't had the experience with it, so doctors don't catch it as quickly (that's changing).
I would read up at the CDC site.
https://www.cdc.gov/lyme/postlds/index.html

Since it's a bacterial infection, there really isn't much to do beyond the initial antibiotic treatment.