All good things must come to an end at some point. This probably would have been shorter and better written in the past.
Unfortunately, the number and severity of Parkinson's Plus issues continues to grow every day and is dominating everything I or my family can do. I can't begin to explain how much **** comes along with this and it's scary. I'm an open book and always have been, otherwise I wouldn't write this, but I don't like attention or sympthy so please don't read as such. For those that have followed me for years, to put it in perspective - I wouldn't even wish this disease on Trump.... who is the antichrist to me. (Ask me again in another year and I might have changed my mind
)
A small portion of the issues are some that are unfortunately impacting my time, ability, and enjoyment online, even CF. Examples of things that impact online; dialogue, not being able to get 3 words out without mind going blank (not just forgetting), reading or writing 3-4 words without completely forgetting topic, let alone sentence. Troubles speaking, understanding voices, typing, critical thinking, all. This email took me 146 mins to write (had reminder to add at end of post).
While we just added an Alzheimer's and Dementia medicine (donepezil) for some specific issues, and it could possibly change things remarkably, it doesn't change the reality. In the past 3 weeks, I've picked up my phone or pulled up a web browser probably less than 5 times total. I've ignored countless PMs or texts, many from my closest members. From an extreme sports freak and political junkie, to not even reading the headlines on any news or sports site for weeks. I love ISU, I love sports, I'm so damn proud of CF, and I've always loved the whole community here like family.
Unfortunately, it is what it is. So after what, 20 years now, I'm going to officially retire from CF. While I don't have an official position and I've mentioned in the past pulling back, I need to make it "official" in my mind as it's such a big part of who I am. Some call me the creator, designer, builder, godfather of CF - a title I hold dear. Others call me a douche, overly emotional, or vocal... but it's just been expressing the passion for ISU and you all that comes out in posts.
I don't want people to think I'm ignoring them for not answering posts or PMs. If and when I do post, I may not make as much sense (some could say that's nothing new). It's amazing how much something like this place can mean to somebody - the past years you have helped me get through many of life's ups and downs and I owe that to all of you - literally saving my life a couple times. Hell, I even got scolded from the wife for working on CF from the hospital when our oldest was born.
While you may see an occasional post or so, I probably won't answer any direct messages. I absolutely love the support and reading them, but it's too hard mentally and physically to respond. I cry many times a day and have to manage how much I get worked up trying to keep connections alive.
I don't know if you call this a good-bye, a see you later, or whatnot, but I hope you'll see me on occasion.
But know that I fvcking love every one of you like family.
Jer
Unfortunately, the number and severity of Parkinson's Plus issues continues to grow every day and is dominating everything I or my family can do. I can't begin to explain how much **** comes along with this and it's scary. I'm an open book and always have been, otherwise I wouldn't write this, but I don't like attention or sympthy so please don't read as such. For those that have followed me for years, to put it in perspective - I wouldn't even wish this disease on Trump.... who is the antichrist to me. (Ask me again in another year and I might have changed my mind
A small portion of the issues are some that are unfortunately impacting my time, ability, and enjoyment online, even CF. Examples of things that impact online; dialogue, not being able to get 3 words out without mind going blank (not just forgetting), reading or writing 3-4 words without completely forgetting topic, let alone sentence. Troubles speaking, understanding voices, typing, critical thinking, all. This email took me 146 mins to write (had reminder to add at end of post).
While we just added an Alzheimer's and Dementia medicine (donepezil) for some specific issues, and it could possibly change things remarkably, it doesn't change the reality. In the past 3 weeks, I've picked up my phone or pulled up a web browser probably less than 5 times total. I've ignored countless PMs or texts, many from my closest members. From an extreme sports freak and political junkie, to not even reading the headlines on any news or sports site for weeks. I love ISU, I love sports, I'm so damn proud of CF, and I've always loved the whole community here like family.
Unfortunately, it is what it is. So after what, 20 years now, I'm going to officially retire from CF. While I don't have an official position and I've mentioned in the past pulling back, I need to make it "official" in my mind as it's such a big part of who I am. Some call me the creator, designer, builder, godfather of CF - a title I hold dear. Others call me a douche, overly emotional, or vocal... but it's just been expressing the passion for ISU and you all that comes out in posts.
I don't want people to think I'm ignoring them for not answering posts or PMs. If and when I do post, I may not make as much sense (some could say that's nothing new). It's amazing how much something like this place can mean to somebody - the past years you have helped me get through many of life's ups and downs and I owe that to all of you - literally saving my life a couple times. Hell, I even got scolded from the wife for working on CF from the hospital when our oldest was born.
While you may see an occasional post or so, I probably won't answer any direct messages. I absolutely love the support and reading them, but it's too hard mentally and physically to respond. I cry many times a day and have to manage how much I get worked up trying to keep connections alive.
I don't know if you call this a good-bye, a see you later, or whatnot, but I hope you'll see me on occasion.
But know that I fvcking love every one of you like family.
Jer
