Is Fibromayalga Real?
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I have encountered a lot of people who complain about headaches but have never actually had a migraine. I can't really take them seriously. Until you've seen flashing colors in the air and have no peripheral vision, don't talk to me about a headache.
Purple Passion? You can still get it, buts it’s hard to find. Great high school drink….
For me, it's shimmering lines across my vision and then 20 mins later I've got splitting pain. Awful stuff.
People questioning autoimmune stuff really irk me. For many many people with autoimmune disorders there will be no diagnosis. It can come as pain, rashes, fatigue, and a whole host of other symptoms that seem unconnected.
Rule of thumb: just believe people. I'd rather believe everyone and have a few people take advantage of it, than even have 1 person suffer without help.
Completely agree on this sentiment. I feel the same when I describe crippling anxiety and panic attacks. People be like, "yeah, I get really nervous sometimes too. Just gotta push through." Gee thanks.
I'm hyper-sensitive to strong smells like paint, cologne, perfume, cigarette smoke.
I've had people tell me before that they think I'm imagining things. Yeah, I can just make my lungs, nose, and chest start burning when I'm around someone. Or I can make myself get a bad headache just by thinking about it.
I dont have any experience with Fibromayalga but I believe people are experiencing what they say.
I've had people tell me before that they think I'm imagining things. Yeah, I can just make my lungs, nose, and chest start burning when I'm around someone. Or I can make myself get a bad headache just by thinking about it.
I dont have any experience with Fibromayalga but I believe people are experiencing what they say.
Couldn't agree more.
Anxiety/Depression - I won't get into as they're so consuming, especially if you're one of us that our brains don't ever shut off and have 3-4 constant thoughts going at any given second 24/7. I didn't know some people actually have moments of silence in their brain until my wife told me that a few years ago.
OCD - it's on a whole nother level of ****** up. I scream in my head when somebody makes a comment about having OCD because they're picky. In reality, it's such a ****** up mental process that makes you think horrible things (and I mean horrible) and have to do rituals (mental or physical) just to be able to move. And you know those thoughts and rituals are the stupidest thing on earth but absolutely cannot control or stop them.
The worst part of all three of those is when you're incredibly introverted, you can't talk about it with anybody. My wife and I have been together for 25 years (I'm 40) and she has seen the pain but I've only been able to talk about it a couple times. I finally sent her an email a few months ago about how Anxiety, Depression, OCD, and ADHD combine to **** me up.
But that's enough about that as I don't want to derail the convo further - it's a whole different thread.
I'm incredibly empathetic and sympathetic to people that have mental issues, unexplained physical issues, or other chronic diseases - diagnosed by blood test or not.
I will always assume Fibro and migraines exist. I assume that some with use it as a catch-all and others may use it as an exaggerated excuse, but that doesn't diminish it for everybody else.
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My impression/guess is that it is real in certain circumstances, probably caused by other undiagnosed issues, but undoubtedly there are some people who use the unprovable nature of this to their own ends.
In a lot of ways I think times have just changed (for the better IMO). I had to be damn near dying to be kept home or meet the school criteria of puking or whatever (used that to my advantage once in second grade to watch an ISU NCAA tourney game). Now days they are more strict of no fever for 24 hours and whatnot.
Cave Lite.
But if this was on Twitter people would be accused of unholy acts and a mob would be on the lawn
When I did a tour in insurance I was told that fibro is made up and people use it to try and pad their claims.
This has been a few years, but not that many years
The problem is the ones who make stuff up are quite often the most vocal and then are also stupid and are vocal that they made it up and got away with it. They are the ones who ruin it for the honest people.
I had a former acquaintance who would complain about headaches all the time.
We tried telling her it was because she was hungover due to her other issues to no avail.
This is what happened to me one afternoon ~5-6 years ago when I experienced my first optical migraine, felt something strange coming on, then I had to lay down at work for :30 or so, it was wild.
Not sure where you got your numbers. Women needed a federal law for inclusion, some of the history regarding is here:
History of Women’s Participation in Clinical Research
Established in 1990, the Office of Research on Women's Health serves as the focal point for women's health research at the National Institutes of Health
This link focuses on drug trials for cardiovascular, psychiatric, and cancer related treatments:
The second link provides numbers regarding women’s illnesses:
“According to the CDC, cardiovascular disease and cancer are the leading causes of death in the United States. The research identifies that this fact is the same when looking at just the female gender. Furthermore, psychiatric disease impacts a large portion of women.
The results uncovered an underrepresentation of women in clinical trials for all three diseases. Compared to the 49% of people with cardiovascular disease who are women, only 41.9% of clinical trial participants for cardiovascular disease medications were women.
Similarly, 51% of cancer patients are women, but drug trials only had a female participation rate of 41%.
The starkest lack of portrayal was in the psychiatric studies. While 60% of psychiatric patients are women, only 42% of psychiatric clinical trial participants are women.”
Also to Cowgirl’s point about the difference in women:
“An article published in the American Family Physician Journal found significant differences in how women absorb, distribute, metabolize, and excrete drugs. Additional studies have also found that women have differing adverse side effects to medications and experience these side effects at higher rates.”
Had my first recently. At least that's what I think it was.
In a meeting and started seeing some kind of flickering in my vision. It grew and then looked geometrical and sharp....that changed to an aurora and I couldn't read my screen.
Happened while I was speaking to a group. Weird weird stuff. I'd be happy if that never happened again.
Anyone that has unexplained pain, should make lifestyle changes to see if that makes a difference. No processed foods, no soda, no sugar (natural sugar in fruit is great and will help satisfy that craving), and no fast food, avoid restaurants in general. no vegetable oils and low quality oils. And completely eliminate gluten from your diet. Try that for three months and see how you feel.
pain and discomfort are very interesting things.
I've come to realize that I've struggled with depression and anxiety for much more of my life than I've realized. A lot of my persistent 'symptoms' are pain, body aches and general exhaustion.
There's no way to know for sure "is this just normal?" "do other people feel this way?" The subjective nature of pain and discomfort is interesting.
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