Why is life worth living?

Jer

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Feb 28, 2006
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Its difficult to be staring the ending of your life in the eye, and not knowing the future and how it not only going to affect you, but your wife and kids.

I lost my SIL last month, a week before my younger brother called, he has been feeling sick all winter long, and went up for some blood tests to figure out what was wrong. They diagnosed with terminal liver cancer, he was referred to IC, where they have started some infusions to slow down the growth of the cancer. I pushed him to go up to Mayo for a second opinion, they had it all set up and his insurance company refused to OK it, they said Mayo is out of his area, he could go to the Mercy Cancer Clinic in Des Moines or continue treatment in IC.

According to an email I received from his daughter, if he does everything they say, basically stop drinking, take all the infusions and get very lucky, they give him a year at most. The doctor, who is a local kid and went to school with my niece, told her that there was nothing anyone could do for him, the treatment he is on, is to slow down, not cure his cancer. Chemo and radiation are out of the question as he would not survive either treatment, a liver transplant is not an option as he would die on the table from lack of blood.

Treasure every minute you have with your wife and kids, take them on trips, even if its to the park, things that they can remember, when you are gone, and take plenty of photos or videos of you for them to have and remember you, when you are gone. God bless.
I’m sorry to hear about your loss, prayers are with you and the family!
 

snowcraig2.0

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I hope everybody is doing good as we head into better weather and more sunshine.

Update/ Venting - feel free to ignore...

Mercy One Ruan Neurology denied our referral as the symptoms, conditions, and progress are better handled by the University of Iowa's Advanced Neurology Center. Of course the logistic issues are going to be a royal pain in the ass, but the bigger stresser is the prospect of MSA.

The big concern is if the diagnosis is going to remain Parkinson's Plus or Parkinson's Plus with MSA (Multiple System Atrophy).

While Parkinson's Plus is a lifelong prison sentence in hell, MSA is a death penalty with a 6-8ish year expiration date. If it were MSA, we would probably be on the lower end of that range based on timing and progress. If not, then we have hope of continuing to manage symptoms for a longer life.

Obviously very different prognosis and anxieties between the two. Scared to death of the MSA option as I want/need to be here for the kids. They have all my mental health issues and I can uniquely connect with them to help them navigate the challenges past, present, and future. I'm terrified of not being able to do that, and thus fail at the one thing I was put on this Earth for - to be the best dad I could be.

When does Football start again?
As one of the OG's here, all I can say is we love you bro. This site and your work bring tons of joy to everyone here. My wife might murder you because of how much time I spend on here but that's a different story lol.
 

JP4CY

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As she was dying and could no longer speak, my mother fixed her gaze on me and smiled, bright eyed, encouraging me that after all was said and done, life had been good and she was happy.

I hope I have the opportunity to be as gracious when I’m at that stage, and that I am.
If your family is around you that means a lot at the end.
 

kirk89gt

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There are most definitely little joys in life. Wearing school colors in enemy territory is one of them. Think of it as a very respectable middle finger to everyone but the one and only thing of value in Iowa City.

And that is my 16yo son that does it…….raised him right!
 
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deadeyededric

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The anxiety thread has me thinking, and it probably sounds stupid but something that has really been on my mind the last year or so is "what is the point of life". I think it has increased my anxiety. I'm not afraid to die, don't think about it really, im not suicidal, or depressed but I'm 45 and starting to question it. I refuse to be an atheist but I am agnostic because I think religion is ********.(Not being critical of believers but you'll never convince me). As I've gotten older and seen some of my peers pass away it does get me thinking. This stuff never crossed my mind 5-10 years ago. Ill never believe in religion but there has to be something more right? It can't just be us being good humans while we're alive and checking out.
 

mj4cy

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As she was dying and could no longer speak, my mother fixed her gaze on me and smiled, bright eyed, encouraging me that after all was said and done, life had been good and she was happy.

I hope I have the opportunity to be as gracious when I’m at that stage, and that I am.

So sorry for your loss. Those are the moments that no doubt will you keep you going when life throws its hardest test at you.
 

CycloneSpinning

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I‘m not an overly religious person - don’t go to church but try to live by high morals and ethics. I haven’t read the whole bible. I’m an analyst and scientist at heart so these things are tough, like you say. I firmly believe in the big bang, expansion of the universe, and evolution. But I don’t pretend to know, nor do I try to necessarily understand what started everything. Heck, our universe could be a floating turd in some bigger entity’s man cave.

I did go to church when I was a kid (very relaxed Methodist church, no hard beliefs). We did a reenactment overnight thing and it was super powerful. I haven’t been to church since though. I do not think all was foretold and all is a big plan. But, I have to believe there is something after, or else it’s a painful journey and a sudden non existence without anything you love.

So, I live my life the best I can and I’ve prayed every night since that 5th grade church camp almost the exact same thing each time, never missing a night (some of that is OCD). It has evolved slightly as I’ve gone through different stages of life, but it’s about my family and only a few words have changed with life. I figure that none of us know, but I’d sure as heck try to be on the invite list just in case.

Having this hope there is something, anything after, is why I haven’t tried suicide again - I want to be here for my family and I certainly don’t want to be black balled (and life insurance wouldn’t pay).
This conversation takes a turn into something I’m very comfortable with…but perhaps mods are not. I’m comfortable with my comment getting deleted…but you guys (and you in particular Jeremy) should perhaps consider the one criminal on the cross who Jesus told would be in heaven that day. There is no indication he ever did anything to live a good life. It was physically impossible for him to “earn it” at that point.

And the comment that there is nothing anyone can do to convince a person to believe is correct. I’m not going to go any further at the moment out of respect for the site and those who can’t stomach it at this time but genuinely love talking about this.

Best wishes, Jeremy.
 

nrg4isu

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Not sure where to post this, but since this thread is about life, living and death...

The small town I live in has a popular after school care center and a driver drove literally through the building killing at least 4 kids. No official names yet, but all 4 were under 18. This is a place my kids went to before covid. We're pretty sure one of the deceased is a former soccer teammate of my oldest.

I sit here just not even knowing what to think. I think I supposed to be more upset about this. But really I'm just wondering what is the point. These kids were probably sitting up against a wall in the gym, maybe scribbling in a notebook. And then a car blasts through a wall tearing the **** out of everything in it's path.

I'm just tired. I'm not drunk, but I can't even form a coherent thought.
 

deadeyededric

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Not sure where to post this, but since this thread is about life, living and death...

The small town I live in has a popular after school care center and a driver drove literally through the building killing at least 4 kids. No official names yet, but all 4 were under 18. This is a place my kids went to before covid. We're pretty sure one of the deceased is a former soccer teammate of my oldest.

I sit here just not even knowing what to think. I think I supposed to be more upset about this. But really I'm just wondering what is the point. These kids were probably sitting up against a wall in the gym, maybe scribbling in a notebook. And then a car blasts through a wall tearing the **** out of everything in it's path.

I'm just tired. I'm not drunk, but I can't even form a coherent thought.
In fairness I think maybe the amount of news we get nowadays and social media has me questioning " the point of life" more. I often hear horrific news and its not that I'm not appalled or anything, but im just kind of numb to it because its a regular occurrence. Ill always be good to my fellow man and what not I'm to the age where I'm just unsure of a lot of things. I'm not sure I even know how to explain it. I just really don't understand sometimes the "point of life". Is it to help someone? But to help someone who is just going to die and end up like dust like me? I mean what really is the point of that? It's just confusing. There surely has to be something more than life on earth right? I mean I hope so
 
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FriendlySpartan

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In fairness I think maybe the amount of news we get nowadays and social media has me questioning " the point of life" more. I often hear horrific news and its not that I'm not appalled or anything, but im just kind of numb to it because its a regular occurrence. Ill always be good to my fellow man and what not I'm to the age where I'm just unsure of a lot of things. I'm not sure I even know how to explain it. I just really don't understand sometimes the "point of life". Is it to help someone? But to help someone who is just going to die and end up like dust like me? I mean what really is the point of that? It's just confusing. There surely has to be something more than life on earth right? I mean I hope so
The only thing that is guaranteed to us is this life we are living right now. Sadly for many this answer isn’t enough (which I get and understand) but for many coming to that realization can make a real positive impact on their lives.

I see a lot of people who’s time is close and the ones who are most unhappy seem to be the ones so focused on regret and what they missed out on that they let it kinda take over. Many of those at peace and who are ready to be done seem to feel that they squeezed the most out of their life (regrets and all) whatever that meant for them.

Pretty common to start having those thoughts/questions as people get older and I think they are important things to think about as long as those thoughts move you to action.

Also wanted to say you were doing good work on the anxiety thread so you got the helping others part down for the week
 

Jer

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Feb 28, 2006
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Please ignore, just venting the only place I can...

Vent/

In the last 20 minutes we've found out that...

1 - The soonest I can get in, even as a high priority/risk patient, with my new neurologist in Iowa City is in May of 2026 - over a year from now. Good news is he's literally the best of the best, but now I have to scramble to figure out continuation of care/Rx/etc since my Dr is fully retiring. All I will get, most likely, is for my PD meds to move over to my primary care dr until then.

2 - We switched from UHC to Blue Cross on 5/1 with my official termination to disability - my group plan to my wife's. I take 32 medications so it's quite the chore. The first one to be up for refill has already hit a wall. One of my most critical mental health meds is excluded from the plan due to its extreme cost ($3,500/mo).

It took countless years, 2 mental breakdowns, and a suicide attempt to find the right mix by trying combinations of 16 different SSRIs, SSRNs, antipsychotics, atypical antipsychotics, benzos, etc. Settling on a combo of 5 meds currently that take the edges off my Bipolar 2, Major Depression, extreme Anxiety, OCD, ADHD, etc as much as possible. Obviously they only help to a degree, but it's enough to have kept me alive the past 2 years I've been on it. With PD bringing it's own mental health issues, it's even more concerning.

/End Vent
 

wxman1

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Please ignore, just venting the only place I can...

Vent/

In the last 20 minutes we've found out that...

1 - The soonest I can get in, even as a high priority/risk patient, with my new neurologist in Iowa City is in May of 2026 - over a year from now. Good news is he's literally the best of the best, but now I have to scramble to figure out continuation of care/Rx/etc since my Dr is fully retiring. All I will get, most likely, is for my PD meds to move over to my primary care dr until then.

2 - We switched from UHC to Blue Cross on 5/1 with my official termination to disability - my group plan to my wife's. I take 32 medications so it's quite the chore. The first one to be up for refill has already hit a wall. One of my most critical mental health meds is excluded from the plan due to its extreme cost ($3,500/mo).

It took countless years, 2 mental breakdowns, and a suicide attempt to find the right mix by trying combinations of 16 different SSRIs, SSRNs, antipsychotics, atypical antipsychotics, benzos, etc. Settling on a combo of 5 meds currently that take the edges off my Bipolar 2, Major Depression, extreme Anxiety, OCD, ADHD, etc as much as possible. Obviously they only help to a degree, but it's enough to have kept me alive the past 2 years I've been on it. With PD bringing it's own mental health issues, it's even more concerning.

/End Vent
Outside of when absolutely freaking necessary we have sworn off going to UIHC anymore. Absolutely horrible to deal with appointment wise. You either work your life around when they will see you or you don't go.

Always thinking of you man.
 

ArgentCy

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Please ignore, just venting the only place I can...

Vent/

In the last 20 minutes we've found out that...


It took countless years, 2 mental breakdowns, and a suicide attempt to find the right mix by trying combinations of 16 different SSRIs, SSRNs, antipsychotics, atypical antipsychotics, benzos, etc. Settling on a combo of 5 meds currently that take the edges off my Bipolar 2, Major Depression, extreme Anxiety, OCD, ADHD, etc as much as possible. Obviously they only help to a degree, but it's enough to have kept me alive the past 2 years I've been on it. With PD bringing it's own mental health issues, it's even more concerning.

/End Vent

Now I'm sad... In the only place I can't vent.
 
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ArgentCy

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The anxiety thread has me thinking, and it probably sounds stupid but something that has really been on my mind the last year or so is "what is the point of life". I think it has increased my anxiety. I'm not afraid to die, don't think about it really, im not suicidal, or depressed but I'm 45 and starting to question it. I refuse to be an atheist but I am agnostic because I think religion is ********.(Not being critical of believers but you'll never convince me). As I've gotten older and seen some of my peers pass away it does get me thinking. This stuff never crossed my mind 5-10 years ago. Ill never believe in religion but there has to be something more right? It can't just be us being good humans while we're alive and checking out.

I think the Eastern Religions had it much more closer than the West. I'd say ask me what I think of the Pope but that wouldn't be allowed.

I think Life is much more like a video game. It certainly is real but we are all part of the same thing. The thing that is actually creating the video game. So learn the lessons and try to overcome some of the levels that are tripping you up, but enjoy the thing and know that you have a very large counter in that all important Lives category.
 
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NWICY

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Please ignore, just venting the only place I can...

Vent/

In the last 20 minutes we've found out that...

1 - The soonest I can get in, even as a high priority/risk patient, with my new neurologist in Iowa City is in May of 2026 - over a year from now. Good news is he's literally the best of the best, but now I have to scramble to figure out continuation of care/Rx/etc since my Dr is fully retiring. All I will get, most likely, is for my PD meds to move over to my primary care dr until then.

2 - We switched from UHC to Blue Cross on 5/1 with my official termination to disability - my group plan to my wife's. I take 32 medications so it's quite the chore. The first one to be up for refill has already hit a wall. One of my most critical mental health meds is excluded from the plan due to its extreme cost ($3,500/mo).

It took countless years, 2 mental breakdowns, and a suicide attempt to find the right mix by trying combinations of 16 different SSRIs, SSRNs, antipsychotics, atypical antipsychotics, benzos, etc. Settling on a combo of 5 meds currently that take the edges off my Bipolar 2, Major Depression, extreme Anxiety, OCD, ADHD, etc as much as possible. Obviously they only help to a degree, but it's enough to have kept me alive the past 2 years I've been on it. With PD bringing it's own mental health issues, it's even more concerning.

/End Vent

Please ignore, just venting the only place I can...

Vent/

In the last 20 minutes we've found out that...

1 - The soonest I can get in, even as a high priority/risk patient, with my new neurologist in Iowa City is in May of 2026 - over a year from now. Good news is he's literally the best of the best, but now I have to scramble to figure out continuation of care/Rx/etc since my Dr is fully retiring. All I will get, most likely, is for my PD meds to move over to my primary care dr until then.

2 - We switched from UHC to Blue Cross on 5/1 with my official termination to disability - my group plan to my wife's. I take 32 medications so it's quite the chore. The first one to be up for refill has already hit a wall. One of my most critical mental health meds is excluded from the plan due to its extreme cost ($3,500/mo).

It took countless years, 2 mental breakdowns, and a suicide attempt to find the right mix by trying combinations of 16 different SSRIs, SSRNs, antipsychotics, atypical antipsychotics, benzos, etc. Settling on a combo of 5 meds currently that take the edges off my Bipolar 2, Major Depression, extreme Anxiety, OCD, ADHD, etc as much as possible. Obviously they only help to a degree, but it's enough to have kept me alive the past 2 years I've been on it. With PD bringing it's own mental health issues, it's even more concerning.

/End Vent
Eagleville Mo, and find the right strain that'll help tone back some of the anxiety and some of the others?
Good luck you always have kind thoughts and prayers coming from the CF faithful.
 
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Gonzo

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Eagleville Mo, and find the right strain that'll help tone back some of the anxiety and some of the others?
Good luck you always have kind thoughts and prayers coming from the CF faithful.
For that, Indica >>> Sativa.
 
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Jer

CF Founder, Creator
Feb 28, 2006
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Outside of when absolutely freaking necessary we have sworn off going to UIHC anymore. Absolutely horrible to deal with appointment wise. You either work your life around when they will see you or you don't go.

Always thinking of you man.
Thanks! I wish we could go elsewhere but Mercy declined due to the specifics of my Parkinson's, despite appealing 3 times. I would have loved to stay with UnityPoint, but with my Neurologist leaving, they don't have another Parkinson's specialist.
 
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