You can't get rid of me!
Is Fibromayalga Real?
- Thread starter deadeyededric
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To lighten up things: this post triggered a memory. One of the times I was in the ER with my wife, a nurse was drawing her blood. The nurse told us there was a guy a few rooms down who was tattooed from neck to waist and both arms. But was causing all sorts of problems getting blood, because he was AFRAID OF NEEDLES!
The other thing I'd recommend for anyone with a major health condition is this: push hard when it comes to interacting with the medical community. If you are passive, things won't get done. Tell you doctors what you need. Follow up aggressively. Just assume the front-office staff won't do their jobs correctly, and call them every 3 days until they do what they're supposed to do.
Examples:
Examples:
- Doc says you need a CT scan and will refer you for one? Just assume someone will mess up the referral. Follow up aggressively. Call until it's in place.
- Need a form completed for disability/Social Security/FMLA, etc? Don't rely on the receptionist to send it back. Until you have a copy of the form in your hand and look at it, and send it in yourself, and then make sure it was received, it probably hasn't been.
- Ask for referrals. Don't just settle for "come back in 10 weeks if it still hurts" if it doesn't seem quite right to you. Trust your gut.
- If you don't feel right about what your doc is saying, it's 100% OK to get a new doctor or a 2nd opinion!
And unfortunately, for the more difficult (and not clearcut) medical conditions and pain syndromes, the pathway to recovery (if there is one) can be very complicated. Not only from being able to find the right specialist, but with insurance, bills, etc.
Thankfully there are some very bright practitioners out there, who can effectively treat many of these difficult conditions. Some of the treatments are not maistream either. Finding them, and getting insurance to pay for coverage, another story many times.
There are many astonishing things about this thread. Lots of good advice and insights. I’ve just assumed the vast majority of people here are office schlubs like me. Can’t believe all the medical professionals. Is FriendlySpartan a Mich State fan and Er Doc who comes here for conversation? If so, that’s freaking bananas.
I wish I had known about such magic after the nine and a half pounder. I weighed 141 at the OB visit that morning and 123 after the birth 6 hours later, probably 10 pounds less than I weighed when I got pregnant. Doctor comes in when I am sitting in the sitz bath that night and says, “I think you could have had a bigger one.” I felt like I had been hit internally by a train. I did for weeks afterwards. The rest were pretty easy but if there was something that would have made me feel better like PT I wish I had known. The sitz just helped with fact that doctor got there too late for an episiotomy. Do you know if PT is helpful for vaginal birth recovery or aimed at C-section recovery?
Now the question is does @Acylum just dip out of the thread or does he double down super hard, I think those are the only two options.
Lol I have a friend tatted up the wazoo who works in hospital administration who won’t donate blood cause she’s scared of needles and yeah the tats are all from legit places so she is eligible
Both and it's never too late. The one I follow on insta works with women decades after their pregnancy years. So does the one I went to. Happy to DM if you want!
Michigan state/Michigan fan but yeah. Came over for the realignment chatter but this is one of the better boards I had ever interacted with.
Most of this is fine, just when you’re being aggressive calling back, remember that the people you will be talking to have almost zero control over most issues you are calling for.
Also sometimes ask a doctor if they think you should get a second opinion even if you do feel comfortable with what they are saying
Thanks I just never knew! I have a friend whose daughter is a PT so I will inquire but let you know if I need more resources. I think that baby did a number on my bladder and now that I’m old it is only going to get worse. I think there must be stuff I can do besides what Dr. Google has advised.
Pt friend will know but just in case, you specifically want PFPT as the specialty. Many countries include as part of postpartum care. And yes, that's very fixable and don't just do kegels because they can make it worse!
deadeyededric said:
I have a friend that continually goes to the hospital only to be told there is nothing wrong with her. They won't even prescribe her pain pills. “Why does this condition only affect middle-aged women who are lonely and need attention?”
Shame on me for calling out the statement in quotes as being disrespectful?
Interesting stance.
If fibro was perceived as a male disease there would be billions flowing into research and treatment.
Can confirm there is PT directed toward that issue. It's kind of like Kegels on steroids...
I think hating on women of a certain age is so popular and accepted that people no longer recognize it for what it is or have the courage to call it what it is. But at least you make me feel less alone by being appalled by it.
Friend, I think you and I are on the same page. From your post I wasn't sure if you were being sarcastic with OP, (maybe saying that you didn't think Fibro pain was real). Or, I thought you might be dismissing his statement entirely. Both kind of hit me wrong. Thus, I responded how I did, right or wrong.
I do not mean to call the intent of your post disrespectful or shameful, at all. And, I don't think the OP meant his post to be disrespectful either. Perhaps not worded quite right?
Maybe we can leave it at that. Peace.
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